Davis, Cheryl Wood’s son, is the thirty-forth person in the world to be diagnosed with Phelan-McDermid Syndrome, a rare deletion on the twenty-second chromosome. Also known as 22q13, the deletion manifests as a bewildering array of developmental, behavioral, and medical issues.
Tao of Davis is the heartfelt, honest, and, at times, tearful story of living alongside disability. It is a true tale of surrender to the journey we are given, flowing with crisis, and embracing the sweet moments along the path.
Wood shares the story of how she and her husband cared for Davis while also struggling to meet the needs of their two other children in California’s remote mountain town of Mammoth Lakes, on the edge of the Great Basin.
Tao of Davis witnesses the courage required to embrace life’s hardships, accept what limitations cannot be changed, and strive to better the remaining opportunities left in the wake of disability.
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What an adventure our recent two life flights and three hospitalizations were...Davis is glad to be in his own home with his team of care providers.
Our son Davis was the 34th person in the world to be diagnosed with the Phelan-McDermid Syndrome (PMS). #Seizures #RareDisease #PMS #MammothStories #Disabilities #SpecialNeeds